Upcoming events

    • 16-Sep-2021
    • 7:00 PM - 8:00 PM (EDT)
    • Virtual event using Zoom

    Cogswell-Macy Act: A Family Focus

    On September 16th at 7:00pm eastern, NFADB will be discussing next steps in the Cogswell-Macy Act: A Family Focus

    The objectives include:

    • Discuss updates
    • Ensure families understand the impact of CMA
    • Support families who want to get involved
    • Schedule meetings and create teams to meet with legislators
    • Discuss next steps and family needs
    • 01-Oct-2021
    • (EDT)
    • 19-Nov-2021
    • (EST)
    • Zoom

    NFADB will partner with other Deaf-Blind organizations to train family leaders. 

    The Family Advocacy Project will train family members who already possess leadership skills to advocate on issues important to the field of deaf-blindness.  The participants will gain skills in advocacy, work together to develop actions and an agenda, and be organized and supported to advocate at the state and national level.

    The family organization representatives will develop a national agenda and then convene in Washington DC for a Day on the Hill in 2022 to utilize the newly honed advocacy skills!

    • 20-Oct-2021
    • 7:00 PM - 8:30 PM (EDT)
    • Zoom Webinar

         Got Transition Webinar

    NFADB along with our family organizations and partners from the NFADB Affiliate Network, the CHARGE Syndrome Foundation, The Global Foundation for Peroxisomal Disorders (GFPD), Helen Keller National Center (HKNC), and the National Center on Deaf-blindness (NCDB) invite you to the Got Transition Webinar Event on Wednesday, October 20, 2021, 7:00-8:30pm eastern.

    Got Transition® is the federally funded national resource center on health care transition (HCT). Its aim is to improve the transition from pediatric to adult health care through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers.

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.


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Phone: 800.255.0411
Fax: 516.883.9060


PO Box 1667
Sands Point, NY 11050

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