• Welcome

welcome to nfadb

The National Family Association for Deaf-Blind (NFADB) is the largest national nonprofit organization empowering families with individuals who are Deaf-Blind.

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What is Deaf-Blind?

What does the term "Deaf-Blind" mean?  The answer to this and other questions are here.

What is Deaf-Blind?

What NFADB Believes

NFADB believes that individuals who are deaf-blind are valued members of their communities and should have the same opportunities and choices as others in the community.


Supporting families to ADVOCATE for services

Helping families CONNECT for support

Providing information and training to TEACH families and professionals

nfadb in action

Welcome Our New Board Members

Katrina Michel

Hi my name is Katrina Michel, I am blessed to be the mother and full time caregiver to my incredible 5 year old daughter with CHARGE Syndrome. I thoroughly enjoy engaging in a variety of related organizations including the Deaf-Blind Collaborative of Florida & US Virgin Islands Advisory Board as a parent representative. a co-facilitator within the Family to Family Community Project (connecting families of individuals with DeafBlindness), the CHARGE Syndrome Foundation as a state parent liaison of Florida, as well as a part of their Family Assistance Program workgroup, and lastly, as a founding member of an affiliate organization of the NFADB named, Family Partners for the DeafBlind of Florida & US Virgin Island. It is paramount to keep in mind that every individual has a voice and that their voice not only matters, but is necessary for change where there is a need. I am thrilled to join the board this year, to grow in advocacy for the DeafBlind community alongside their families, where it has been quoted before by Helen Keller “alone we can do so little; together we can do so much.”

Lisa Lopatofsky

live in Waymart, Pennsylvania with my husband and three young daughters.  My two oldest have Usher Syndrome Type 1b and my oldest was also diagnosed with Vestibular Migraines.  I am the Vice President of the Pennsylvania Partnership for the DeafBlind, as well as a member of the PA Deaf-Blind Advisory Committee.  I work as a Parent Mentor with the Family Connections for Language and Learning Program and volunteer as a Peer Supporter with Parent to Parent of PA.  I am also a member of various organizations that support the Deaf, Blind, and DeafBlind and am excited to join NFADB’s Board to help further the organization’s mission as well as support my girls and others like them. 


In Memoriam

It is with great sorrow that we share the news that our dear friend and Special Advisor of NFADB, Steve Perreault, passed away. Steve was instrumental in the development of NFADB and a longtime supporter of families with individuals who are deaf-blind. Steve was a kind, caring friend to all and will be dearly missed by our deaf-blind community.

In his honor, NFADB is proud to announce

The Steve Perreault Award

El Premio Steve Perreault

In 2022, NFADB will honor the contributions of a professional, paid or non-paid. This person is a non-family member who has shown outstanding service to an individual or individuals who are Deaf-Blind. 

The annual nomination period is October 1 through December 31.

NFADB is very proud to announce Clara Berg (NY) and Gordon Boe (PA) as the recipients of the 2021 Steve Perreault Award. Congratulations!!

This year, The Steve Perreault Award recognized family members who have created a lasting and profound impact on the quality of life for individuals living with deafblindness and their families.

Recipients of the 2021 Steve Perreault Award are the heroes among us

• who live and work with passion and demonstrate outstanding advocacy to benefit families with individuals who are deaf-blind

• who have shown outstanding leadership in the deaf-blind community to make a difference at the local, state and national levels.

This award is given annually in recognition of Steve Perreault who grew up in Massachusetts and began working in the deafblind program at Perkins School for the Blind in 1978. He worked and volunteered in the field of deaf-blindness locally, nationally and internationally for over 40 years.

Steve could make a connection with a child or adult that made you feel like you were the only person with him even in a crowded room. He shared his expertise and years of experience through stories, thoughtful suggestions, and lots of laughter. He was a humble man who cared deeply about others and he brought hope to countless families in the deafblind community. Steve was a talented educator who also championed family advocacy and he helped to found the National Family Association for Deaf-Blind.

NFADB logo at top, congratulations to award recipients for 2021, Clara Berg & Gordon Boe with pictures of both

Meet Our Families

Read stories from our community and learn more about our family association.

Family spotlight


The National Family Association for Deaf-Blind (NFADB) is pleased to spotlight Lisa Lopatofsky and family 

State Resources


Find out about specialized resources for Deaf-Blindness in your state.


Learn More

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.

EXPAND YOUR FAMILY NETWORK

become a member of nfadb


SUPPORT NFADB

Our work is supported by organizations and individuals like you.  

Support our work


Donation goal

Goal: $50,000.00
Collected: $18,676.50
37%

PHONE OR FAX

Phone: 800.255.0411
Fax: 516.883.9060

MAILING ADDRESS

PO Box 1667
Sands Point, NY 11050

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