Upcoming events

    • 16-Sep-2021
    • 7:00 PM - 8:00 PM (EDT)
    • Virtual event using Zoom
    Register



    Cogswell-Macy Act: A Family Focus

    On September 16th at 7:00pm eastern, NFADB will be discussing next steps in the Cogswell-Macy Act: A Family Focus

    The objectives include:

    • Discuss updates
    • Ensure families understand the impact of CMA
    • Support families who want to get involved
    • Schedule meetings and create teams to meet with legislators
    • Discuss next steps and family needs
    • 01-Oct-2021
    • (EDT)
    • 19-Nov-2021
    • (EST)
    • Zoom

    NFADB will partner with other Deaf-Blind organizations to train family leaders. 

    The Family Advocacy Project will train family members who already possess leadership skills to advocate on issues important to the field of deaf-blindness.  The participants will gain skills in advocacy, work together to develop actions and an agenda, and be organized and supported to advocate at the state and national level.

    The family organization representatives will develop a national agenda and then convene in Washington DC for a Day on the Hill in 2022 to utilize the newly honed advocacy skills!


    • 20-Oct-2021
    • 7:00 PM - 8:30 PM (EDT)
    • Zoom Webinar
    Register


         Got Transition Webinar

    NFADB along with our family organizations and partners from the NFADB Affiliate Network, the CHARGE Syndrome Foundation, The Global Foundation for Peroxisomal Disorders (GFPD), Helen Keller National Center (HKNC), and the National Center on Deaf-blindness (NCDB) invite you to the Got Transition Webinar Event on Wednesday, October 20, 2021, 7:00-8:30pm eastern.

    Got Transition® is the federally funded national resource center on health care transition (HCT). Its aim is to improve the transition from pediatric to adult health care through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers.

Past events

26-Jul-2021 CMA Twitter Blast July 26 - July 30
13-Jul-2021 NFADB Annual General Membership Meeting
24-Jun-2021 Cogswell-Macy Act: A Family Focus Chat featuring Maurice Belote, Robbie Blaha, Tracy Evans-Luiselli, & Cyral Miller
20-May-2021 Cogswell-Macy Act: A Continued Family Focus, featuring Maurice Belote & Tracy Evans-Luiselli
20-Apr-2021 Cogswell-Macy Act: A Family Focus, featuring Robbie Blaha
23-Mar-2021 Recruiting Participants for Doctoral Dissertation Study
01-Mar-2021 Texas Symposium on Deafblind Education
22-Oct-2020 My Family's Journey: Advocacy, Self-Care, and Resiliency
22-Oct-2020 Sponsor 2020 Deaf-Blind Experience
22-Oct-2020 El Viaje de mi Familia: Abogacía, Cuidados Personales y Resilencia
11-Sep-2020 Northeast Regional CHARGE Syndrome VIRTUAL Conference
01-Sep-2020 Family-to-Family Communities Project (F2FC)
26-Aug-2020 ¡Ya esta abierta la inscripción para el curso de autoaprendizaje en línea sobre sordoceguera! (FREE Spanish-Language Online Course Study Registration open now!)
14-Jul-2020 NFADB's Annual General Membership Meeting
10-Jul-2020 12th Annual USH Connections Conference - NOW VIRTUAL
08-Mar-2020 2020 EARLY HEARING DETECTION & INTERVENTION MEETING
26-Feb-2020 Capitol Hill Advocacy Day Summit
09-Oct-2019 NCDB Hosts: Deaf-Blind Immersion Experience
03-Oct-2019 *New York Deaf-Blind Awareness Experience*
27-Sep-2019 DBMAT 46th Annual Family Conference
25-Sep-2019 MaxiAids WEB-A-THON to benefit NFADB!
17-Sep-2019 CDBS & NFADB: Monthly Spanish Calls
11-Sep-2019 Western Regional Early Intervention Conference
02-Aug-2019 14th International CHARGE Syndrome Conference

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs.

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