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Families Matter to NCDB

Do you know about all of the cool things happening nationally that impact children and young adults who are deafblind…things such as: What is an intervener? Can children who are deafblind learn to read? How can I prepare my child for life after age 21? Are there resources in Spanish?

Get in the loop! Create a Profile on the National Center on DeafBlindness (NCDB) Website:

As parents, guardians, youth who are deafblind, and family members, you are the key voice in everything we do. We have set up our website so that you can create a profile and  join groups that interest you.  Since there are more than 10,000 learners (birth through 21) in our nation who experience deafblindness, this is a great way to make sure you stay informed. 
Here’s how you join . . .

 Step 1: Go to

Step 2: Click on “Make a Profile” in the upper right-hand corner of the screen

Step 3: Fill in the information requested and click on “Create My Profile”

You’re in! Now you can join the Family Engagement Group!

Step 4: From any screen on the website click on the “Connections” tab (it’s in the bar across the top of the page) and choose “TA Initiative Groups”

Step 5: Click on the “Family Engagement” link

Step 6: In the upper left-hand corner of the screen click on “Join Group”

Now you are a member of the Family Engagement Group and can post to the forum. Remember that although you have to be a member to post, this is a public group and posts can be read by anyone, so take care not to post personal details.

The next time you come to the website, it is less complicated and you don’t have to go through the 6-step process. Instead, just follow these steps:

  • Login (in the upper right-hand corner of the screen) using the username and password you chose when setting up your profile.
  • You will then see your name (also in the screen’s upper-right corner). Click on the “down” arrow next to your name. The names of any groups you belong to will appear.

OUR MISSION:  NFADB exists to empower the voices of families with individuals who are DeafBlind and advocate for their unique needs.


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Our work is supported by organizations and individuals like you.  

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Donation goal

Goal: $50,000.00
Collected: $45,271.00


Phone: 800.255.0411
Fax: 516.883.9060



PO Box 1667
Sands Point, NY 11050

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