NFADB Board of Directors
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lissa elkinsBoard MemberPolicy, Information, and Education Committee Co-ChairMy husband and I live in Tennessee with our five children; four of them are girls and our youngest is a boy. We refer to him as our “mighty lion.” He has Stickler Syndrome, a progressive connective tissue disorder that causes DeafBlindness. As the mama lion, I sought community, understanding, and hope after his diagnosis. I have been so fortunate to build an amazing network of support, with the NFADB being one of those invaluable resources. My goal as a board member is to “pay it forward,” and provide a small light for others on their own journeys with a deafblind child. I am passionate about early intervention, sibling support, and inclusion/access for children with different needs like my son! |
nancy giuratoBoard MemberMy passion for advocacy is deeply rooted in my own family’s journey. My husband and I live in North Carolina with our two children, both of whom have special health care needs. Our daughter’s chromosomal condition led to complex medical challenges and DeafBlindness, shaping my path as both a caregiver and advocate. Professionally, I support families as a parent educator at the Exceptional Children’s Assistance Center, serve as the NC DeafBlind Project Family Engagement Coordinator, and collaborate with the NC Family to Family Health Information Center. As a board member, I’m committed to building strong partnerships and ensuring families impacted by DeafBlindness feel supported, connected, and never alone. |
Kristi arsenaultBoard MemberPolicy, Information, and Education Committee Co-ChairI am honored to serve as a board member of NFADB and to support the DeafBlind community and families through outreach and advocacy efforts. I have a beautiful 10-year-old daughter who is DeafBlind and is so full of life and loves everyone she meets. Over the past several years, I’ve been grateful to participate in and co-facilitate the Family-to-Family Communities (F2FC) program, connecting families of individuals with DeafBlindness. I love doing research and using my skills to help others, and I'm looking forward to being part of the NFADB board and family. |
NFADB Special Advisors |
CYRAL MILLER Special Advisor I live in Austin, Texas, and am a TVI and mother of two adult children. I’m the former Director of the Texas DeafBlind Project (1990–2018) and now work part-time as a VI Outreach teacher with TSBVI. I completed my TVI certification at the University of Texas at Austin and began my career as an itinerant TVI in San Antonio, later teaching in a VI elementary resource room in Austin ISD. After earning a master’s in public affairs, spending time in England, and working for the City of Austin, I returned to the VI field, first as assistant to the TSBVI Superintendent and then as Outreach Director overseeing the TX DeafBlind Project. I’m thrilled to collaborate with the NFADB Board, a group of exceptional innovators and advocates. |