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National Family Association for Deaf-Blind

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Resources & Links

Our primary funding sources are:

The Helen Keller National Center (HKNC) is the only national rehabilitation program that works exclusively with youth and adults who are deaf-blind. Authorized by an Act of Congress in 1967, the Center operates a residential and training facility at its headquarters in Sands Point, NY , and provides support services throughout the country through its system of field services.
Hilton Perkins Program - the Hilton/Perkins Program at Perkins School for the Blind expands educational programs to children who are deaf-blind or blind with additional impairments in underserved communities worldwide thanks to the generous support and philanthropic leadership of the Hilton Foundation.
Related Links
American Association of Deaf-Blind (AADB) – the national consumer organization for individuals who area deaf-blind.


Bookshare is an online library of copyrighted digital accessible books and textbooks, free for U.S. K-12 and postsecondary students with proof of disability. Digital accessible books can transform the learning experience for students who are blind, deaf/blind, have low vision, a severe reading disability or physical disability. Accessible formats enable learners to follow highlighted text on a computer screen or device, listen to text read aloud, navigate through chapters and set preferences based on the reader. Students who qualify have an IEP (Individual Education Program) or 504 Plan and require accessible (digital) materials and reading technologies to access general curriculum. Bookshare offers a vast collection of novels, teacher recommended reading, periodicals, best-sellers and over 7000 K-12 textbooks; many with image descriptions. Members can download free reading technologies to improve reading comprehension and fluency, independence and make easier transitions to college.
CHARGE Syndrome Foundation - The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Cornelia de Lange Syndrome Foundation - CdLS is a congenital syndrome with many disabilities including vision and hearing loss.
The National Coalition on Deafblindness was formed in 1987 in response to a need to provide feedback to legislators and policy makers regarding the ongoing needs of children who are deafblind and the reauthorization of Individuals with Disabilities Education Act (IDEA). If you have questions, suggestions, and/or would like to become involved, please sign up for the National Coalition on Deafblindness discussion group.

National Center on Deaf-Blindness (NCDB) provides technical assistance and information services to agencies serving children and young adults who are deaf-blind, as well as their families. DB-LINK, which is part of NCDB, is a federally funded information clearinghouse that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years).
National Association for Parents of Children with Visual Impairments (NAPVI) - A national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities.
Ski-HI Institute - The Institute's primary purpose is to identify and respond to real needs of young children who are deaf/hard of hearing, blind/visually impaired, deafblind, multi-disabled, or who have any special needs.

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